hi everyone. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Eat fruit-flavored ice pops. I have been getting mouth sores on the roof of my mouth that are very painful. So anyone with ANY ideas as how to go about getting rid of them would be greatly appreciated. First, there’s the sticky post with a site that’s great on what the tests are. I’ve got a really sore one going on my tongue and that’s what my dentist called it.
I’m too wiped out to do any research, so just thought i’d research with the lupus experts here. Thanks everyone. It is a numbing agent. Aphthaous ulcer is the clinical name for a canker sore. Those are gone with treatment. Tell them you need magic mouthwash. I lisped so badly I was unintelligible.
I’m sorry! I’m sorry you are going through such a rough time. Canker sores appear inside the mouth. Women with lupus are more likely to have high-risk pregnancies than those without this chronic disease. Ultimately I trust there are dentists in your community who can address your needs; it is just a matter of making the connection. http://www.geocities.com/HotSprings/4620/what.htm scroll down and read the symptoms! The tongue sores did hurt though.
I was prescribed the magic mouthwash that was a mix of amlox, benadryl and lidocain. Hi Emmi, Yes I use to get those sores on my tongue before my lupus was under control, they were so bad my tongue was swollen Thankfully my my rheumy was able to see it for herself. That’s when she gave me the Rx for “magic mouthwash”. I also get mouth sores and I take folic acid daily which really helps to keep them from occurring as often, however I do get them when I am flaring. Eat things that are “cold”, such as: cucumber, celery, watermelon, no orange. I ended up getting progressively sicker over the weekend. By last night, I had a fever of 103.
Off to my PCP today. Allenpurenall is a prescribed medication for gout. (by the way, it was my dentist who thought it was a canker sore; my rheumie didn’t see anythink ulcerous about it althought that was on Thurs. afternoon to be fair–I’m looking for a new one anyway). I also have the thrush (yeast or candidiasis) on my tongue, on my cheeks, in my throat and into my esophagus. Hey, Okie, I got the swish and swallow stuff too. He also gave me 2 anti fungals; one for the herpes and one for the esophagus.
He also gave me some lidocane for the herpes that hurts so d*** bad. I never had one of them before. He said he figures I got all of this since I’m immunosuppressed. He did blood work and blood cultures along with a chest x-ray to be sure there’s not fungal stuff in the lungs. The other stuff is to see if he can determine the cause of the fevers. If it’s not the fungal stuff, he needs to treat for bacterial or let a virus run its course. I don’t mean to whine–actually I can’t whine, it hurts to talk and swallow and drink and I’m sick of having the chills and the sweats and being sooooo tired but can’t sleep because everything hurts–oh!
However, it is important to note that people affected by this disorder could experience this type of unexplained fever on a recurrent basis. Sorry! ((((((Emmi))))) You sound too sick to be posting. I’ll see what I can find on the net. In most cases, ocular herpes causes inflammation and sores on the lids or outside of the cornea that go away in a few days. It’s going away on it’s own. I think a lot of what we get is caused either by our AI disease or because we’re immunosuppressed.
Those are more viral and can also be caused by the herpes virus, any virus, or stress. But you obviously have a lot more than that going on. I have a close friend in Indiana who has scleroderma and I’ll ask her about it. What do they think the fevers are caused by? Hang in there and try to get some sleep. I’m so sorry you’re having such a rough time right now and I’ll be praying for you and thinking of you. Don’t apologize for whining!!!
That’s what we do all the time. We’re here for you Emmi. I’ve recently found a solution for aphthous ulcer. At least it works for me. I mixed salt in drinking water( it should be very salty) and then gurgle with it. You have to do it at the very early stage of the ulcer, or it might not be helpful later. And try to gurle on night just before you go to sleep and don’t eat or drink anything after the gurgle till the morning.
So the salty taste remains. That’s why I choose to do it just before go to sleep. Do this for 2-3 days in a row. I’ve try it everytime when the ulcer attacks, and it’s working so far. I’ll be happy if this could help anyone to lessen the pain of aphthous ulcer. Hi Emmi, I get the mouth sores on my tongue, inside my cheeks, on the roof of my mouth and on my lips. Lichen planus is not contagious and does not pose a high risk for becoming cancer.
These complexes become lodged in various tissues throughout the body, such as the kidney and joints. Avoid caffeine and other products that induce diuresis. Just get a small lid full and swish it around just like you do for mouthwash. Kind of painful but it works pretty good and they’re gone within a couple of days. I have been getting quite a few over the years – had one under the tongue a couple of times. about halfway through last year it got much worse – like 7 ulcers at one go followed by 5 the next round and so on. Turns out it was because my blood count had dropped quite a bit (particularly neutrophils) which led to (along with other symptoms) the SLE diagnosis a couple of weeks later.
Prednisone in, blood count up, no ulcers for two months!! Salt water gargling does help, but not for everyone. When I was in the midst of excruciating pain from all the ulcers, there was one thing that was an absolute lifesaver: a steroid cream, Oracort (Triamcinolone acetonide 0.1%). Hope it’s not causing you too much grief! One hyphenated word: L-glutamine. Break open two capsules and swish it in your mouth three times daily. Swallow.
I wanted to reply here about tongue ulcers. I had three ulcers come and go over three months that were DEBILITATING. It was very painful to swallow, eat and talk. I saw an oral surgeon who performed a biopsy, have had a ton of blood work drawn, got two second opinions, ruled out infectious diseases (fungal, viral, parasitic) with an infectious diseases expert, and am now in the hands of a GI doc. I can provide photos of these tongue ulcers. They are no fun. What healed me up quick, though, was swishing L-glutamine in my mouth.
I mean, “less than 24 hours almost completely gone” quick. I cannot recommend this enough! The prescription mouth wash was only helpful for about 20 minutes. Malabsorption has been confirmed by stool samples and blood work shows a deficiency in fat-soluble vitamins. I’m on the docket for an endoscopy and colonoscopy to determine what type of IBD I have. But, tongue ulcers, fatigue and skin rashes were my first symptoms of something out of whack. Good luck!