Yes, difficult when no diagnosis, depressing to lose a significant part of my life and frustrating that things can still go undetected these days…but they were probably saying that 50yrs ago too. I have had these sensations for two days w/o seeing anything but I am also very much stressing and can’t stop inspecting myselft. I just want to reassure all of you with constant herpes prodrome symptoms that NO, this is not just something you are imagining! STD/STI’s are always going to be stigmatised in the world. Of all the people I’ve met with herpes (and I know many), nearly every single one has eventually come to experience what many of you have described on this site, which is a point, after several years (usually 5-10), when the outbreaks stop completely, but are then replaced by CONSTANT, non-stop, very mild, but rather annoying prodrome symptoms. tingling, lesions (other than the ingrown hair I had), blisters, etc) have formed, I did have some inflammation near a cut I had on my penis that has since gone away. mild itching, or tingling, or numbness (like a foot falling asleep, but somewhere in the genital region) that nearly everyone with herpes knows quite well.
None of us can figure out why this happens, but it DOES HAPPEN, and it’s absolutely real. And do you know much about latest research into herpes – vaccines, cures etc? For now, just know that you are not crazy! This is real. If not at mine we had about (not kidding) 20. I never had many outbreaks, even in the beginning, and even my first was quite mild. My only concern was keeping my partners safe.
From the beginning, I refused to go on any daily suppressive medication, and to be frank, I’m very glad I never did. I used condoms until I got married, and then I stopped. My husband and I have been married for several years and he is still virus-free. I strongly believe that refusing toxic medication and living very healthfully is the reason why my body became so strong early on and was able to suppress the virus entirely on its own. I hope that someday drug companies will put their efforts into researching CURES instead of just hooking us on pills with side-effects to help us “live” with all these viruses. Your body is in overdrive for stress and I am sure expeling a lot of energy. I just really wish that the experts would listen to us and stop pretending that what we’re experiencing isn’t real.
This needs to be taken seriously, studies need to be done, and we need to be given answers as to whether or not we’re contagious at the point when the outbreaks stop and the near-daily, very mild prodrome symptoms begin.