Has anyone else ever experienced the burning sensation and have to some degreee everyday. It can be confusing, because these symptoms are listed on many web sites. Went to doctor and got two iGg blood tests taken and igm blood test taken for herpes. I’m at a loss for how to treat the nerve pain? Also how reliable is this testing. No STD, including herpes, can cause symptoms less than 2-3 days after exposure, and 2 hours is simply impossible. I was having uncomfortable & persistent discharge for at least seven days.
In my previous experience, symptoms similar to yeast infection had never lasted more than two days tops. At the time I had also just gone through a break-up and was in a quite an emotional funk. Much of what you describe sounds most suspicious for the physical manifestations of anxiety or stress. I’m thin, 5′-10″ average weight 135, so I had reached an unhealthy weight. My PCP gave me a prescription for diflucan. I took it, I didn’t feel better. No further STD testing is necessary.
I had never had either prescriptions, yeast or BV. In the past I’ve had symptoms that I’d self-treated with drug-store yeast medications. I didn’t strictly follow the dosing for the BV medication. I skipped some days and didn’t follow through on all of the doses. I also drank alcohol while on the BV treatment. Needless to say, I didn’t get better. And the day after I drank alcohol while on the BV med, I thought I was going to die.
I didn’t. My PAP came back and was positive for HPV. My blood cultures & swabs all came back negative, including for yeast & for herpes. Yet I still felt awful and not even close to normal. My PCP called to tell me I had HPV and she said I was at risk of developing warts and cervical cancer, and that I should follow up with a gyn. So off I go to the gyn. She takes a look, says I look normal.
I say I don’t feel normal, I don’t discharge like this! She says “discharge is normal, the cervix is like a self-cleaning oven, it will heal itself, given time.” I take a tiny bit of comfort in this. She says, “in two weeks, if it itches or it smells like fish, call me!” I nod a tearful, OK. I leave feeling a little better pyschologically but about the same physically. Mostly I’m frustrated & very confused. I have the urine tests while I’m there. The urine test comes back negative, it’s not yeast, a UTI or BV, according to my pee.
In two weeks, I feel itchy, or at least I think that’s what I feel. I go back. I tell her I’m discharging and uncomfortable and have developed a burning sensation inside my labia minora & I have a constant urge to pee, still! The gyn looks, she says I look normal, she sees nothing, my color is good. She reviews online my results from the PCP’s office, she acts like she’s at a loss. She says, the burning could be from this condition called lichen schlerosis. She prescribes for me Clobetasol Propitionate.
She says put it on the labia or where you feel the burning sensation, very lightly twice daily. I say OK. For my urge to pee, she gives me a sample of a drug for overactive bladders, she says take one of these every day for two weeks. I take the sample home, it’s called Vessicare. She also sends me for some bloodwork because she says herpes is known as the great imitator and my discharge, burning and urgency to urinate could be herpes, and that the culture I’d had previously, means NOTHING. I go for the blood test, I go home. I take the vessicare for a few days then discard the rest.
I apply the Clobetasol gel at first twice daily. After reading up online however, I am scared to apply the gel, because I read that it is an immunosuppressant, and in my mind I am about to sprout giant warts and the last thing I need is to apply an immunosuppressant the area. I stop applying the gel. About a week after the bloodtest, I call for my results, my Igg test is positive for HSV2. My gyn gives me a little prepared speech on HSV2. She tells me I have 2 suppressant medication options. She suggest trying the acyclovir twice daily for suppression.
I start taking the acyclovir twice daily. I am feeling horrible still, feverish even & exhausted. I call out of desperation to ask for valtrex instead. I get it, I take it daily, I am feeling more itchy and more of a burning sensation in my genitals than ever before. I am also experiencing an INTENSE burning in the backs of my legs. I go to the gyn because I have no idea what I’m looking for, I’m waiting to see healing lesions, so I can have some relief! Yet, I’ve been feeling awful and have yet to see a blister for over a month and a half.
The gyn still doesn’t see anything resembling a lesion around my vulva/vagina but she tells me that initial herpes infections can present themselves as other things, bladder infections, discharge, etc. She says the nerve pain in my legs could be from the herpes, she can’t say for sure. The nerve pain is not new to me. The intensity and duration of it are now new. A few years ago I went to my primary care specifically to ask her about the nerve pain (pre-HSV2 diagnosis). I told her I’d experienced it mildly before and never really took it seriously, because it would fade rather quickly but at that time it was intense & lingering. I used to joke that it was “my fat growing”, and I really thought it was associated with lack of exercise.
She did say that muscle can protect the nerves so possibly it was something to do with not exercising. I have always been a pretty active person. So I had a hard time believing that taking a few months off from playing sports or going to the gym could really effect my nerves so significantly. Anyway, after trying a chiropractor and massage therapist for the nerve pain at that time, to no avail, I went back to the gym and played sports again. My nerve pain faded. That flare-up happened to be during a very stressful time for me, 80 hour work weeks, stressful deadlines, poor sleep, poor diet, no exercise. Then maybe a year and half later, I had another round of the nerve pain, which lasted a month or so.
Coincidentally, it followed an (sports related) injury to my pelvic area. I had the nerve pain then as well in the backs of my thighs, but didn’t really think the injury was the cause since it was a familiar sensation to me. I happened to be seeing a physical therapist at the time, so I was able to have them work with me to try to resolve the nerve pain. Never did I or any of my care-givers think that the nerve pain was a symptom of a virus. Maybe it’s not? But it certainly feels like they are connected now. I chose to go to a new Gyn for my next appointment (about 5 weeks after my HSV2 diagnosis).
By this appointment in May, I was no longer taking the anti-virals, because in the short time I took them during the previous month, they didn’t seem to help and I mentally connected them to fever & nerve pain. By this May appointment my nerve pain has faded, but I’m still having the other symptoms. My new Gyn, because she didn’t see any lesions, wasn’t convinced that my discomfort was caused by herpes. This was good and bad news to me. Good, because maybe I was actually suppressing herpes without the meds. But bad because I was left to believe that all of the discomfort I’m experiencing then can only be from HPV. At that point in time, my fear of developing warts was actually greater than my fear of developing herpes blisters.
I went back to the gyn’s office often to have her inspect every little thing, because I was having major paranoia about it & my discomfort was completely fueling my paranoia. I spent the spring & summer in a pretty high stress mode, lots of tears…LOTS. The last time I met with the Gyn, I did mention to her that I felt raw or irritated at the time & it really seemed like everytime I have that raw/irritated feeling, that it coincides with an urge to pee or bladder spasms. & That my abs were actually sore from being contracted so often. So in early October, she says to me, “well maybe we should consider that this is herpes after all; bladder spasms and abdomenal discomfort are common complaints of people with herpes outbreaks.” She suggests that I take the meds again because it cannot hurt. She suggests trying the episode dosing. I did that, for about 10 days.
Following that 10 day episode dosing, for two days, I felt pretty good (mid-October), and so I stopped taking the drugs. And THEN, I felt terrible again: abdomenal discomfort, constant urge to pee, burning sensation on the inside of labia minora, tingling in/around the vulva and intense burning on the backs of my legs, sore throat. I let these symptoms happen for about two weeks without anti-virals. I read on this board about the dermoplast and for the last few days of those two weeks, that dermoplast really helped me. But I figured maybe that shouldn’t be my first line of attack, as it is slightly less convenient than a pill. So seven months later, I’ve decided to see what happens on the anti-viral daily suppression. I’m now taking valacyclovir 500mg/day.
But I’ve only been doing that now for about 5 days. My leg nerve pain is pretty terrible. I do however, feel that the anti-viral has taken care of my abdomen & bladder discomfort. My abdomen feels relaxed, the spasms are gone. I do experience a prickly/tingly feeling in/around my vulva & labia minora, but it comes and goes & varies in intensity. So at this point, I still cannot tell what is an OB, and what isn’t? I have this theory that I’ve had HSV2 for a long time, years even.
& that what I thought were yeast infections or UTI’s in the past, usually clearing in a day or 2, were actually mild OB’s and that the nerve pain in my legs was also from the HSV2? & maybe contracting HPV is what made it no longer possible for my immune system to keep the HSV2 in a more mild state? AND, is the feeling of high-sensitivity/prickliness in the genital area, a constant thing while on anti-virals, or with this virus in general? or am I to assume that only happens during or right before an OB? From what I’ve read my symptoms dont seem like prodrome, because they are lasting so long? Sort of felt good to write all of this down. & I’ve started to log my symptoms, because it’s been hard for me to really confirm that when my nerve pain starts my other symptoms start & whether or not they are indeed always together.
I think the log will help me to figure that out & to determine if there is a connection. I’m also logging what I’m eating & what time I’m medicating & what I’m taking for supplements.